Help Us Fight NF1!

Help raise money for Neurofibromatosis (NF) ResearchNeurofibromatosis (NF) is a genetic disorder of the nervous system that affects thousands of people in North America. NF1 is the more common type occurring in about 1 in 4,000 individuals in the United States. Yet most people have either never heard of it or know little about this disease that affects both genders and people of any race.

NF is typically a genetically transmitted disease that usually results in tumours involving nerves anywhere in the body. Between 30 and 50% of new cases can also arise spontaneously through mutation (change) in an individual's genes and can be passed on to succeeding generations. Additionally, in some cases non-nervous tissue such as bone and skin can also be affected.

NF4Sick Kids attempts to raise awareness about NF1 and support research for neurofibromatosis at The Hospital for Sick Children (Sick Kids) through fundraising events in the Greater Toronto Area. Now in its fourth year, our non-profit organization has raised more than $40,000 and we hopes to garner greater support so that a cure for NF may one day be found.

Born out of a personal struggle with this genetic disorder NF4Sick Kids offers support and hope so that people affected by NF1 know they aren’t alone and those around may understand what they are going through.  What began as one family’s determination to accept the NF1 challenge has become a shining ray of hope in the lives of many affected individuals and those who care for them.

You too can help us spread awareness and hope by supporting our fundraising efforts. We welcome corporate sponsorships and have many levels of patronage to accommodate your financial comfort.

Even though most individuals living with NF1 lead seemingly normal lives, they often shy away from society because of the stigma associated with it. Awareness and research can make all the difference.

Show them that you care!

Contact us at nf4sickkids@hotmail.com or 416-720-6472 for more information about how you can support our efforts.

 

In support of Sick Kids Hospital, specifically Dr. Parkin’s department (Paediatric Neurofibromatosis Clinic)5th Annual Retro Boogie Night

Saturday April 5th, 2014
6:00 p.m. – 1:00 a.m.

West River Event Centre
2839 Rutherford Rd
Vaughan Ontario

Tickets: $125 per person

Full course dinner & open bar

Prizes & Silent Auction

Disco & Retro Dress-up Theme